(function(doc, html, url) {
var widget = doc.createElement("div");
widget.innerHTML = html;
var script = doc.currentScript; // e = a.currentScript;
if (!script) {
var scripts = doc.scripts;
for (var i = 0; i < scripts.length; ++i) {
script = scripts[i];
if (script.src && script.src.indexOf(url) != -1) break;
}
}
script.parentElement.replaceChild(widget, script);
}(document, '
Improving a communication survey for people with progressive aphasia
What is it about?
Primary progressive aphasia causes gradual language loss, which affects daily communication. Communication participation, or how people use communication in daily life, is essential to measure in primary progressive aphasia. We conducted interviews with 9 patient-partner pairs to test whether a common communication participation questionnaire (Communicative Participation Item Bank, or CPIB) captures their experiences. Participants found the tool clear and useful but recommended adding more response options and questions about phone/video communication.
Why is it important?
No previous study had examined whether the CPIB fully captures the communication experiences of people with primary progressive aphasia. Our interview approach revealed that while the measure is generally valid, specific modifications, such as adding a fifth response option and including technology-based communication like phone and video calls, are needed to better track disease progression and intervention outcomes in this population.